Innovative Hematology, Inc.

Research Publications

Multistate Analysis of Transfer to Adult Care in Sickle Cell Disease

Contributor(s):

Janson IA, Okolo AI, Miller JI, Hassell KL, Taylor HL, Kanter J, Hardesty BM, Sánchez LM

Plain Language Summary:
As more people with sickle cell disease live into adulthood, moving from pediatric to adult health care has become increasingly important. This study found that fewer than half of young people successfully made this transition, and fewer than one in five established care with an adult blood specialist. Those who did transition successfully used more health care services, highlighting ongoing challenges in ensuring continuous, specialized care for adults with sickle cell disease.
Keywords:

Chronic illness; Multi-state; Sickle cell; Specialist; Surveillance; Transition to adult care; transfer