Jacob SA, Frei-Jones M, Saif-Ur-Rehman S, Hulbert ML, O’Brien ARW, Strunk C, Villella A, Talati R, Owusu-Ansah A, Coyne F, McGann PT, Rai P, Miller R, Rampersad A, Sakhalkar V, Bhasin N, Manwani D, Lanzkron S, Kanter J
Plain Language Summary:
Sickle cell disease (SCD) is the most common inherited blood disorder worldwide and requires lifelong medical care. To help improve and standardize treatment, experts from sickle cell centers across the United States developed updated recommendations for people with SCD of all ages.
The recommendations emphasize early and ongoing care, regular screening, education, prevention of complications, and the use of disease-modifying treatments such as hydroxyurea. They highlight the importance of coordinated, specialized care throughout life to improve health outcomes and quality of life for people living with SCD.