Innovative Hematology, Inc.

Research Publications

Evaluation of Access to Care for Women Carriers of Haemophilia in Haemophilia Treatment Centres: A Multinational Experience

Contributor(s):

Harrison C, Beijlevelt M, Crilly E, Dsouza A, Githinji C, Sisdelli M, Bj R, Habaybia K, Maahs J

Plain Language Summary:

Although hemophilia is usually thought of as a condition that affects males, women and girls who carry the hemophilia gene can also experience bleeding problems. More than 30% of hemophilia carriers have bleeding symptoms, even when their clotting factor levels are in the normal range.

Because of this, current guidelines recommend that all hemophilia carriers receive care through a hemophilia treatment center, and those with low clotting factor levels should be treated similarly to males with hemophilia.

Keywords:

carriers; haemophilia; hemophilia; treatment centres; women